take time to dream…

take time to dream…
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the truth about Believing

the truth about Believing

We are all skeptics … we are even cynical at times, that outwardly displays itself as sarcasm or criticism.

“Not me”, right?

Think about the last time someone gave you a compliment … what was your reaction?

We are the first to so readily offer a compliment, a hand and praise to others. We KNOW how important it is to support others. With our modern day technology, it seems everyone and their lives are sitting on the couch right beside us and we know their history … their “story”… as if it was our own.

We “bless their hearts” (at least if you are a good southern woman) and send empathetic love to them through “likes” and even reach out to let them know we care.

We are aware of how much love we SHOULD give others because their pain is much more visible to us now. We all feel freer to share … we know this is part of the healing process.

This is where we step in and help those we feel are in need, with a basket full of muffins or a plant from our garden. We are the first to sing their praises as if they have forgotten the tune, pat them on the back, pick them up and dust them off and put them upright again.

YET…

When someone, anyone, shows us that same kindness …

we scoff or laugh it off. We feel we have “wasted” their time. “Oh, you shouldn’t have bothered.”

We even volley back to them any compliments they shower us with as refutes, disagreements, or even a “yeah, but.”

Why is it so hard to believe that others see the same light in US that we see in them? Why can’t we allow others to lift us up when we are in need without feeling burdensome? Why can’t we believe that their truth is that WE are important too?

Think on that a bit….

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the truth about Chaos

the truth about Chaos

I have it ALL under control! We all say it but how many of us ever truly feel it is so? Our logical mind flips its cape and proudly puffs out its chest but the heart mind taps on our shoulder and says “hey sister…didn’t you forget about x, y AND z?”

A hurricane many years ago pelted water sideways into my eaves until the whole right side of my house looked as if it was crying. Literally the walls were streaming with water and I looked liked one of those cartoon characters running around without enough fingers to plug all the holes. Little did I know that my stellar performance in THIS emergency (which may I add I am usually on point in these situations) would look like an amateur when the real cape doning was to come….

The whole kitchen and dining room wall would need to be torn out … all the way down to the studs. The bamboo flooring and kitchen tile also had to be torn out. Did I mention I was a homeschooling mother who valued our little piece of tranquil property out in the county more than anything in the world?

…so in rushed the water mitigation team and insurance adjusters, roofers (yep we needed a whole new roof too) as well as contractors and anyone else who wanted a piece of our insurance claim money. They set up seven industrial fans to dry out the water but never sealed off the open floor planned house. My daughter and I had to scream to hear each other, never mind getting anything productive done. And this lasted for weeks. Much to my argument, dissatisfaction and utter breakdown. This is what is was … no fighting or screaming or explaining was going to end this chaos of my life any time soon.

Sometimes in the midst of the noise and fans and wind and complete disorder … we must shed our cape. There is no one to save but ourselves in that moment.
Our hearts.

Our sanity.

So we have to just sit our ass down on the torn up tile floor amidst the wind and noise and breathe.
that’s it…

no fighting or fussing or controlling these situations.
just be still…

and listen…
to our hearts. That is the one place chaos will never reside. We must learn to silence the logical mind to hear our heart mind.

THAT

is where peace resides.
#FindYourTruth

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Your Trifecta of Bliss …

Your Trifecta of Bliss …

The path to happiness can seem long and daunting … even when we know we hold the key to happiness now in our hearts and our hands. If you’re feeling stuck on the long path, register (free) for Deepak Chopra’s next 21 Day Meditation Challenge “Manifesting Grace Through Gratitude.”

BTW, this hits at least three of the 10 Little Rules for a Blissy Life: Getting to Source (#1); Making Rituals (#9); and Giving Thanks (#10). It’s like a trifecta of blissyness for your soul.

And if you haven’t meditated before, don’t worry about a thing. These guided meditations offer a lovely introduction to the art of meditation, with step by step guidance and encouragement. Thirty minutes a day for 21 days could quite literally change your life.

Namaste

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How to be happier … right this moment

How to be happier … right this moment

The advice is all over the internet. We know we should get enough sleep, eat right, exercise, connect with friends, volunteer, take a walk. But there’s one thing that seems to be missing from a lot of this happiness advice.

Quit spending so much time on social media. Like, right now. Stop it.

“Every day there is another article, video or piece of content that tells us we need to do or not do something because science has proven it’s ‘bad for us,’” Levy writes in Entrepreneur. “As a human behavior scientist, it drives me crazy that so many people are still surprised by these so-called discoveries. Did you really not know that sleep is important? Or that obsessing over your Instagram posts is unhealthy? This isn’t new.”

Levy advises us to stop being proud of how well we multi-task (it’s not a good thing, really, it just means we’ve forgotten how to focus). And he believes that much of our distraction, stress and unhappiness comes from our little phones.

“Put away your phone and smartwatch while you’re in a meeting. Close all those browser tabs, shut off notifications, and focus on one task at a time. Be where you are at the moment and nowhere else,” Levy notes.

It’s great advice. Be happy … now. Love you all.

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Word of the day? REMISSION

Word of the day? REMISSION

We’ve been MIA since school has started, with only a few updates via Instagram. Sorry about that!

I swear that we’ve been busy, I haven’t been just sleeping in while the kids are in school. I mean, I have been, but other things have been happening, too. In the past few months, we have made some changes in Hank’s care team. We’ve switched to a new Gastrointestinal doctor as well as a new nutritionist. Choosing to leave our previous office was based on the want for additional information and care, as well as, recommendations from our local EOE social media family.  

When we made the change, I don’t know what I thought would happen. Did I think that a new doctor would have all the answers that the previous one didn’t? Like maybe there was new information and studies that I hadn’t heard about that the new GI knows about? Maybe I did. But she didn’t. The new GI sat down with us and explained that we were already doing what was needed for Hank’s care. But that it had been too long from the last scope, so lets schedule that, shall we?

The scope was done at one of the area children’s hospitals and it was night and day, our experience from the previous facility. From the care of the team, to additional child advocates, to even having toys for the kids (even Dave!) to play with while we were there. The waiting area was another amazing place. My experiences from the previous place were PEANUTS! PEANUTS EVERYWHERE! To now, no one was allowed to bring in food or drink. Signs were everywhere about how their tiny patients were fasting and for their sake, no food or drink were allowed in the waiting area at all. It was mind blowing.

BUT WAIT! THERE’S MORE!

The procedure took the same amount of time as it usually does, for reference, it was the blink of a lazy dog’s eye. Seriously, it is a really quick procedure. We met with the GI and her resident and got the most amazing news.

HANK’S ESOPHAGUS LOOKED LIKE A NORMAL ESOPHAGUS!

I ugly cried in the waiting room. We had never seen a “normal” esophagus before. Like, ever. We were given the pictures and I couldn’t stop staring at them. There was a polyp, but if the Dr wasn’t worried, then neither were we.

Waking for Hank after being sedated has usually been an awful experience. I have talked about hearing him crying before finding him. However, this time, he woke, asked for juice and was hazily watching a movie when I got to his recovery area. No tears, no crabby – just wobbly. It was amazing.

Later in the week, I got the call about the biopsies. Polyp was nothing. Sweet! The eosinophil count was (wait for it) not of significance. Like, there were none to even give me a number count. Do you know what this means? It means:

HANK IS IN REMISSION!

Right here, in my celebration, I am stopped and asked, “Wait, remission? But this isn’t Cancer….” Or “What in the hell? He can have remission? What does that even mean?” “Is he CURED?”

No, it isn’t cancer. Yes, he can go into remission. Sadly, no, he isn’t cured. What remission means for his disease, is that he still has it, however, it is not currently active. He hasn’t had a flair in months and hasn’t been in pain for the same amount of time.

So, he’s in remission. What comes next? The food challenges! A very scary time of trying out foods that we have already decided, through testing and “try and see” methods, to see if we can bring any back into our menu. So, my friends, first up is SOY. Will there be puke? Will Hank be covered in a rash? Will soy prove to be no match for my little boy? Find out next time, folks. Same Hank blog, same Hank webpage.

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Kinda pissed…

A fun little image from 10 Little Rules for Your Creative Soul author Rita Long. Thanks, Rita, you made our day!

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Smells like PSL

Smells like PSL

It’s the FINAL COUNT DOWN, do do do doooooo… do do dododooooooooo!

I have new school clothes on order, I have backpacks in the process of being washed to a like-new state, I have lunch ideas being saved on Pintrest. You know, those meals that Hank won’t eat? Those would be the ones. BUT, I will not feel bad, I am feeling high on life. WHY? Because we’re in the final count down for the new school year.

I love this time of year. I can almost smell the black leggings and feel those cozy pumpkin spice lattes on my legs. Wait. Reverse that. Or not, hell, I don’t care. I’m just too excited!

It isn’t that I don’t love summer. I mean, I don’t, but I don’t hate it. I am an introvert. BIG TIME. So during summer, these kids get a whole bunch of me and not a whole bunch of planned activities. Last summer, I decided that the kid fighting had to stop and that “Next year, they will go to a camp”. So, this summer, they did!

There is a local summer camp that looked like a lot of fun. Mud pits, soccer, animal learning centers, building; you name it, they have it. I was determined that each kid would be signed up so that they get a break this summer and the chance to have fun outside of the home. Bonus to me, it would be at a place where I don’t have to make small talk with other parents.

I signed Dave up for Soccer. He was such a fan for the game BEFORE he went for a week, running, maybe getting the ball and not being the player that he thought he would be … never having played before. He has asked to go back next year, and named three other camps within this one that he would like to do. Done. No prob, Dave. We’ll camp it up.

Hank got a week of animal adventure camp. We received a day-to-day (almost) weather report as to whether he was having fun.

First Day After Camp!

Monday: Mom! It was so cool! I know someone from my school!

Tuesday: *before camp* I don’t want to go. Don’t make me go.

*After camp* It was ok, I guess. Do I have to go back?

Wednesday: MOM! LOOK AT WHAT THEY GAVE ME! *He came running out with a white shirt waving over his head like a flag. Before we even got to the truck, little dude has his shirt off and it stuffing his noggin through the neck hole of the camp shirt. *

Thursday: *Before camp: small, angry camper who doesn’t understand why he can’t wear his new camp shirt to camp. I explain that he wore it half a day, spilled lunch/dinner on it and then refused to take it off for bed. He changes*

*After camp* Tired. Ran a bunch. Saved some imaginary animals. Hungry.

Friday: *After camp* MOM! There was a hotdog eating contest and I won! (no, he didn’t. The camp councilors had a competition and it was amazing to watch)

I personally liked the camp. They checked all ingredients for food activities and rather than making him an odd man out when it was determined that he was allergic, they moved him in with another group and he got to experience more of the camp than he would have. Imagine that. He went to a camp and didn’t feel left out. He actually felt like he had an advantage over the other kids in his group. My goodness. That was an amazing feeling. It was an amazing experience.

So, I’ll say it again. Next year, these kids are going to camp. Only this time, they are going for longer and maybe at the same time. AT THE SAME TIME. Nerf camp, animal camp, maybe building camp is in their future. Pedicures and coffee for me. Coffee. Maybe a cup of that Pumpkin Spice that smells so good.

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